Improving Women’s Cancer Care through Co-production
Who are GO Hildas?
The Dame Hilda Lloyd network was founded in memory of Dame Hilda Lloyd, the first female president of any UK medical royal college. Dame Hilda Lloyd was a trailblazer and made a real difference to the lives of women in Birmingham. We operate as a consortium with other patient involvement groups within the network.
We are looking to create a group of volunteers who share Dame Hilda Lloyd’s ethos and are eager to make a real impact on women's cancers here in the West Midlands.
The group has been named ‘GO Hildas’, which signifies Gynaecological Oncology (the phrase means “issues related to women” and “the study of cancer”, respectively).
We are actively looking for new group members who have been affected by gynaecological cancers, regardless of their background and gender. The following are some of the reasons why you may be interested to join:
You have a personal experience with gynaecological cancers
You are known to have higher risks of gynaecological cancers
You have another cancer (for example, breast cancer) which could be linked to higher risks of gynaecological cancers
You are a carer, family member or friend of patients affected by gynaecological cancers
The group of volunteers will share their experiences with clinicians and researchers who are developing clinical improvement and research projects to advise them on the direction of their project to improve gynaecological cancer care.
What does GO Hildas do?
GO Hildas is a newly developed co-production group, which will be co-led by a patient lead representative. We typically meet 6 times a year (every 2 months) as a hybrid meeting (both in-person and online option simultaneously). Each meeting is approximately two hours. Our first hybrid meeting starts later in 2023.
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We offer remuneration for travel and involvement time. Training will be provided to support volunteers to get their opinions heard over time.
The list below highlights some examples of activities that will give you a flavour of what to expect as one of GO Hildas:
Discussing topical issues related to women's cancers
Advising on lay summaries
Assessing patient documents
Advising on recruitment and dissemination
Reviewing research proposals
Participants who get involved in our public and patient involvement and engagement activities can take part in a wide variety of activities of the Dame Hilda Lloyd network based on their interests and preferences.
What has the team done before?
Previous work led by the GO Hildas organisers (as part of a project called DEMO) led to the development of a multi-language multi-media information package on genetic testing after ovarian cancer diagnosis as one of the IMPROVE-UK Awards funded by Ovarian Cancer Action (see below highlights).
The DEMO project was the winner of the University of Birmingham College of Medical and Dental Sciences Patient and Public Involvement and Impact Award in 2023.
Our commitment to co-production and inclusivity
Co-production in healthcare refers to the collaboration between healthcare providers, patients, families, and communities in the design, delivery, and evaluation of healthcare services. It involves recognising patients and families as equal partners in healthcare decision-making and that their experiences are key to improving the quality and outcomes of care.
We are especially keen to reach out to volunteers from underserved groups, such as individuals from minority ethnic backgrounds, to be a part of GO Hildas. We also actively seek out these groups via different community and faith groups.
Underserved groups, such as ethnic minorities and patients from deprived are often not as well represented in research as we would like. You can be part of changing this going forwards by working with us to ensure that our research better reflects Birmingham and society as a whole.
We are committed to diversity, equality and inclusivity, so please get in touch if accessibility is an issue, as we would like to reduce any barriers to your involvement to the best of our abilities.